Anyone who caught ITV’s Text Santa appeal programme just before Christmas would have watched the television debut from Daisy, a 7-year-old girl with a rare genetic condition whose family is supported by Together for Short Lives.

Daisy2_thumb1In the two years since Pennies launched in November 2010, Together for Short Lives benefited from a share of donations made at every retailer that offered Pennies to their customers. Today the charity continues to receive a percentage of donations made at some of our partners and altogether, your pennies have added up to over £20,000 for Together for Short Lives.

In the past month, the charity was also one of six to benefit from donations made to Text Santa. Pennies was delighted to play a part in the campaign, with donations made on Domino’s website temporarily going towards the appeal.

Hearing Daisy’s story is another reminder of how important your pennies are to Together for Short Lives. Soon after she was born, Daisy was diagnosed with a rare genetic condition called Costello Syndrome. The condition affects less than 300 children in the world and very few of these children survive into adulthood.

Daisy spent her first Christmas in intensive care and she’s had to return there countless times over the past eight years. In that time Daisy’s mum and dad, Steph and Andy, have had to be trained in a wide range of medical procedures so that they can care for Daisy during the time that she is at home – and it’s a 24 hour job.

Together for Short Lives is the national charity for children’s hospices in the UK, including Shooting Star CHASE in Guildford where Daisy is cared for, and the money raised for the charity from your pennies makes an enormous difference. Just £1,500 of the £20,000 you’ve donated so far can provide training for 20 nurses in a hospice like Shooting Star CHASE so that they can deliver the very best care and support to children and young people with life-limiting conditions – providing a vital lifeline for parents like Daisy’s mum Steph.

“We are so lucky to have the hospice” says Steph. “We simply couldn’t have coped without them – they’re our lifeline. Having spent so much of her life in hospital all we want is for Daisy to have fun and experience as much of a childhood as possible. We don’t know how much time we have with her but we are determined to make every minute of the time we do have count.”

To find out more about the work of Together for Short Lives that your pennies help keep going, read the charity’s latest newsletter here.


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