Since October 2016, regulars at Fuller’s pubs and restaurants have been digging deep and rounding up their purchases in support of Shooting Star Children’s Hospices. So far, over £140,000 has been raised via Pennies helping babies, children and young people who are living with life-limiting conditions, and their families.
Shooting Star Children’s Hospices supports over 700 families throughout London and Surrey with a range of nursing, practical, emotional and medical care. As a leading children’s hospice charity, they are there for the child, and the whole family, from diagnosis to end of life and throughout bereavement.
Support from Shooting Star Children’s Hospices is free to families – from short breaks, to symptom management, and a comprehensive range of therapies and support groups for the whole family. Their two hospices, Shooting Star House in Hampton and Christopher’s in Guildford, provide children like Lilly-Anne, her brother, Charlie and the rest of their family with somewhere to be free again; somewhere to play as a family without having to worry about their daily medical regime.
Lilly-Anne, aged four, was born five weeks early and lives with an undiagnosed condition that affects her stomach and bowel. Lilly-Anne has to have TPN (Total Parenteral Nutrition) for 17 hours a day to help her gain weight, putting her at high risk of infection.
Lilly-Anne’s mum explains,
Her gut just doesn’t work; we don’t have a reason why, we may never know. It is hard, really hard. Our life is quite restricted and especially as Lilly-Anne gets older she feels more restricted.
A home care team referred the family to Shooting Star Children’s Hospices for additional support and the family haven’t looked back since.
We weren’t getting a lot of support at home so they said they were going to refer us. I wasn’t sure what to expect, what I was going to see, what it was about. I wasn’t keen at the beginning, but when I visited I realised it was a happy place and how invaluable it is! Lilly-Anne adores it, she doesn’t like to leave, she cries when she has to – she loves playing with the doll’s house especially!
Christopher’s hospice provides the whole family with support: it allows Lilly-Anne’s mum to be a parent again and not a medical carer and it gives Lilly-Anne and her brother Charlie the opportunity to be children and play freely, ensuring that the whole family have quality time together.
It costs £250 for a Shooting Star Children’s Hospices to provide ‘a Hospice at Home visit’ to a young child and their family. Customers at Fuller’s pubs and restaurants across Southern England and the Midlands can on average raise this a day by rounding up their bills with Pennies. Your donations are helping children like Lilly-Anne to be free and giving them the opportunity to play like children again.